At the start of 2025, Nightingale House Hospice welcomed Gwyneth Morgan to the newly created role of Neurological Link Nurse, designed to help more people living with neurological conditions such as Motor Neurone Disease (MND), Multiple Sclerosis (MS), Parkinson’s and Progressive Supranuclear Palsy (PSP) access hospice services earlier in their diagnosis and improve their quality of life.
The role has been made possible thanks to funding from the Masonic Charitable Foundation, through Hospice UK. Nightingale House is one of 11 hospices across the UK to receive this support, helping to shape and test new ways of delivering palliative care for patients with progressive neurological conditions.
Since joining Nightingale House in January, Gwyneth has already made a real difference to people living with these conditions. This specialist role was created to reach more people, earlier in their journey. By offering timely, person-centred and holistic support, Gwyneth is helping those with complex neurological needs feel better connected to the care and services available to them.
As a dedicated link between patients, families and the wider healthcare system, Gwyneth helps coordinate care and ensures people are signposted to the right support at the right time. Her compassionate, practical approach is already having a noticeable impact, with families saying they feel more informed, empowered and supported on their journey.
Recently, Julia Russell, Senior Clinical Practice and Quality Improvement Manager at Hospice UK, visited Nightingale House to meet Gwyneth and learn more about her work, the support offered to patients, and the hospice’s wider community care.
Julia said:
“I had a fantastic visit to meet Gwyneth and Tracy, to hear all about the work they are testing for patients with progressive neurological conditions.
“This has been funded by the Masonic Charitable Foundation, and it was inspiring to see the breadth and depth of work being undertaken.
“I was very impressed with the way Gwyneth is working with several local organisations to raise the profile of the importance of early access to palliative care for people with progressive neurological conditions, as well as promoting the role of palliative care and Nightingale House in the local community.
“Along with 10 other hospices, Nightingale House is at the forefront of testing ways of working which we hope can be shared and replicated across the UK, to ensure that any unmet needs of this patient group are met.”
Gwyneth Morgan, Neurological Link Nurse at Nightingale House Hospice, said:
“It’s a privilege to be part of a project that is helping people with neurological conditions receive the right support at the right time.
“Many people don’t realise that hospice care can help from an early stage, not just at the end of life.
“By working closely with local health professionals and community organisations, I hope to make sure people can access the care and advice they need to live well for as long as possible.
“Seeing the positive difference this support can make to patients and families is incredibly rewarding.”
Gwyneth’s role is helping Nightingale House expand its reach and make hospice care more accessible to those who may not have traditionally known it was available to them. It is a vital part of the hospice’s wider commitment to meeting the diverse needs of the community through compassionate, expert and person-centred care.
To find out more about the services Nightingale House provide, visit nightingalehouse.co.uk
Gwyneth Morgan.
Tracy Thomas, Julia Russell and Gwyneth Morgan.
